Long day...

Yesterday was a long day for us. I took Arwen to school.  I went in and talked to her teacher.  I drove home just in time for Rowan's bus.  I went straight to the gym. Then back home to meet Rowan's bus.  I had a 2 hour window before I had to leave.  Tim came home early to watch Rowan because of Arwen's appointments.  I picked up Arwen from school and fed her a gogurt, juice, and rice krispie treat.  We drove across town to her appointment with the developmental pediatrician.
   Arwen has changed so much over these last two years.  She went from being socially withdrawn to crowding the space of others, She went from being terrified of sound to coping with it,  Developmentally her physicality is still awkward but she handles herself.  She has a bone condition that also affects her coordination a little but it isn't anything that can be treated.  Her fine motor skills are still that of a 3,4 year old. Things like her pencil grasp regress quickly.  But all in all.....her improvement has been drastic.  She used to rock quite a bit as a young child......but now it is rare .  When she actually does it, she slams herself back into the couch.  I remember being pulled aside from one of the teachers at her preschool.  The teacher asked "When did you find out she has autism?"
Then, I was really unsure and no diagnosis had been made. She had OT and speech and had been assessed through the school system.  But I didn't know then that they don't tell you your kid has it.  I answered,"she doesn't have autism."  I said  "she has a few delays."  Then, the preschool teacher said that Arwen's teacher told her that Arwen has autism.  I had been suspicious about it.  I was really mad.  I was mad because nobody gave me a clue or told me about autism.  Anyway.....she has come so far.  The developmental pediatrician said....by looking at and talking to her .....you would never know.  She has to go for the big ADOS test.  I know she has autism....but I feel that it's very high functioning.  Likely, Asperger's.  Trust me, I have done weeks of research,  Even the school speech therapist, occupational therapist, psychologist, special needs supervisor, itinerant teacher...and i forget who the other person was all voted that she falls into the educational category of autism.
If she doesn't get that diagnosis, I am going to be upset.  My son has the micro deletions in his chromosomes which shows this is genetic.  We are seeing a geneticist in January.  Anyway....I'm worrying again.....and it's silly.
After the appointment with the developmental pediatrician.  We went to the lobby. Arwen was starving.  We ran out to the car, where I gave her a little turkey and a string cheese.  We went back in and it was time for her behavioral therapy.  After that was over it was past dinner time.  We drove home ....it was nearly 7pm.  She ate dinner and off to bed.  We skipped bath that evening,  I was spent by the end of the day.  Honestly, I was spent before we even went to the doctor.